We don't know the full story yet, but we do know that Winnie's recent radiation treatments did not halt her cancer. Just the opposite, the scan revealed a large tumor in that same place on her face, and it's possibly growing into her brain. She has another appointment soon to get a follow-up opinion on the new growth and what the plan will be from here.
We'll keep you posted, but in the meantime please send your Good Vibes to Winnie and her family.
Mike
I was diagnosed with a rare form of cancer at the base of my tongue in February of 2009, at the age of 57. My wife, Terry, and I use this blog to share that experience with our families, friends, and others who may be in this same situation, either as a cancer patient themselves or as the primary care-giver. We invite anyone interested in our story to read the blog and to reply with their own stories and experiences in fighting this terrible disease.
Thursday, March 28, 2013
Thursday, March 7, 2013
No News Is Good News
It's hard to believe that it's been over 5 weeks since I've posted anything, but that just means no news is good news. I have not detected any new ORN spots since the Trophy Shard came out in December and another very tiny one came out in late January. I have detected some slow healing in the crater in my jaw, and that's another good sign. I am trying not to get overly confident, since the ORN could resurface
any time in the next 10 years or more, but so far, so good.
I do wake up every day with some considerable pain in my jaw--I think from the pressure of sleeping on my side at night. I have tried to fall asleep on my back, but just seem to naturally roll over to one side in my sleep. The good news is that the pain subsides a lot once I'm up and around in the morning. I'm never pain-free in that area, but don't need any meds to get me through the day, so I'm thankful for that.
The next step is to get my dentist's opinion on when he can start to do work on my teeth again. I've pretty well resolved that I'm looking at full dentures, but he needs to wait until the ORN has stabilized before that process can begin. It would not do any good to get dentures and then have my jaw start to deteriorate again.
We have no update on our friend Winnie. She has a scan soon to get the preliminary results of her second round of treatments, but it's likely that any scan this soon will produce a false positive. I have not seen her recently, but Terry has and tells me that Winnie is in mostly good spirits--but does worry a lot about the outcome of her last treatments.
More soon.
Mike
I do wake up every day with some considerable pain in my jaw--I think from the pressure of sleeping on my side at night. I have tried to fall asleep on my back, but just seem to naturally roll over to one side in my sleep. The good news is that the pain subsides a lot once I'm up and around in the morning. I'm never pain-free in that area, but don't need any meds to get me through the day, so I'm thankful for that.
The next step is to get my dentist's opinion on when he can start to do work on my teeth again. I've pretty well resolved that I'm looking at full dentures, but he needs to wait until the ORN has stabilized before that process can begin. It would not do any good to get dentures and then have my jaw start to deteriorate again.
We have no update on our friend Winnie. She has a scan soon to get the preliminary results of her second round of treatments, but it's likely that any scan this soon will produce a false positive. I have not seen her recently, but Terry has and tells me that Winnie is in mostly good spirits--but does worry a lot about the outcome of her last treatments.
More soon.
Mike
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